Raising PKU awareness

Following Wednesday’s Keynote Luncheon, Governor Arnold Schwarzenegger of California met with John Adams Jr., a Phenylketonuria (PKU) patient who was diagnosed with the disease as a newborn.

PKU is an inherited metabolic disorder that causes problems with brain development, leading to progressive mental retardation and seizures.

Adam’s father currently serves as the President & CEO of the Canadian PKU and Allied Disorders (CanPKU), a non-profit organization dedicated to help provide peer-to-peer family support, information sharing, research support, public education, and advocacy.

Mr. Adams also volunteers as Treasurer of the Canadian Organization of Rare Disorders.


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